Will Trade Meds for Tacos

There has been a few hard things I didn't really feel up to posting about recently. These are just small bumps that will pass and I know I will be able to look these in the past very soon. I'll start with my hair.  You know, when I was diagnosed it was so not one of my concerns. I knew that people lost their hair because of chemo, and I wasn't too worried. I was excited to change up my hair with this opportunity and donate it to children with cancer. I really hope those 8.5" made someone as happy as my hair always made me. On Sunday, April 2nd at about 8:30, I finally got the courage to shave it. At this point my hair was coming out every minute. Anywhere from a few strands to many many chunks. It became very annoying- I had hair everywhere and I just couldn't stand it. The nurses here have clippers, and my nurse at the time, Sam said that she would do it. She had used clippers before and I shouldn't be worried about that. The whole thing was very emotio...

So we got some new news a couple days ago. On my 14th day in the hospital they do something called a bone marrow biopsy. Which is when they put this needle in my hip bone through my back to pull out bone marrow. It is so not pleasant but it's really fast and not terrible . The worst part is when they pull bone out. Sometimes you can feel a pain all the way down your leg! But again, it's super fast. It really only takes about 10 minutes and about 10 seconds of pain. So the results of that came back and showed that I still have quite a bit of leukemia cells in my body. This isn't necessarily bad news. 1 out of 3 people who get treated for leukemia need to have a second round of chemo. They warned us about this and that it just means that my body didn't metabolize the chemo as much as it was supposed to. Hopefully this last round will be it though! This means an extra couple weeks in the hospital. And then when I get out I may need to go back for additional chemo tr...

Hi World! I have had quite the interesting few days! Henry came to stay with me and that was nice. He even stayed over in the hospital room with me. It is the first time that I've seen him since I have been in here. It was so nice to finally talk to him in person. Accomplishment of the day: I did some homework and entered some projects in my schools art show. Still a little behind but I am glad to get things moving. So the past few days I have been having a very fluctuating temperature. At night I usually hit about 100, but then within an hour or so my temperature would go back down to 98. The nurses and doctors say that that's normal and I am basically expected to get an infection. I stared getting more cramps in my intestinal area. It actually hurt pretty bad and came in waves throughout the day. Then I hit a fever again and they decided to run tests to see where these infections are coming from, and to figure out the pains. It meant it was a busy day! Mostly busy fo...

My seven days straight of chemo is almost up! Around 6pm today the bag will empty and I will not have to be hooked up to any machines for a while! Now i have to get some tests done on my bone marrow to insure that the leukemia is gone, if it is now- another round of chemo. If it is- build back my blood cells! This blog post is very difficult to write because I have not be able to stay awake any longer than just an hour or so today. I am very weak and light headed and I don't have much appetite today. These are all common side effects that I am getting to the end of the chemo. So comical enough, as I type this my eyes keep closing and I keep losing focus. I hardly even know what I'm writing anymore! It's funny because everyday I think about how I am so drained, but then the next day comes and it seems like it is 10x worse. I didnt ever think I could sleep as much as I am right now! Here are some photos of me and my (possible) last bag of chemo!!!! By 7:...

I'm so glad that I can blog from my phone. This makes it a lot easier on days that I'm tired! Today was a weird day- I had to get tested on a few viral infections that I could catch on the hospital since my blood counts are so low. So most people have their blood playlet counts at 150. Mine are 19 Hemoglobin should be over 12 Mine are 6.5 I think I totally butchered the medical part of what I just said but just understand that they are looowww.  So today whenever I had friends visit me they had to put on masks and gowns so that they didn't infect me with any sort of viral sickness. It was funny but it's also weird. I am also a bit cold pretty often and still a bit weak. But hopefully we get those tests back soon tonight or tomorrow to see that I do not have anything viral! Today I NEED to address a BIG problem!!! So everyday I have had "fun" ordering food off of the hospital menu for three meals. There is something that is just so fun about ...